A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Tuesday, October 2, 2018

Change of address


It has been a while since I updated my blog, probably because I thought we were nearer the end of reportable events. As it turns out, however, things kept happening that totally consumed us.

Earlier, this year, we got involved with a new Center of Excellence (CoE) for GBS in Columbus at OSU’s Wexner Medical Center. After two visits, our Dr rediagnosed me as having a different type of GBS than I was being treated for.

All is fine, but it may take a “bit longer” to recover from this type (AmSan) than from the Miller Fisher variety. After all, I’ve only been at this a few years.

By most other measures, this has, however, been an eventful year! In  brief, I had a kidney stone that gave us a lot of trouble, then I was diagnosed with cancer and went through a treatment plan that included forty radiation doses over two months.

Not to be outdone, Náncy fell and broke her hip, had surgery, and is hobbling everywhere with a walker. She’s not out of the woods yet. Drs are talking about hip replacement.

Our van broke down, again. This time, however, we decided to get a newer van with fewer miles. To this end, I found and bought a one owner, ‘13 Caravan SLT with only 30k miles, and is bright red. It’s in Phoenix, and has never seen salt. It seems  nicely equipped, so we’ll know in the next week or so.

Oh yea, one other thing happened that affected us - we wère told that we had to move out of Elmcroft, ostensibly because “…they were concerned about getting us (me) out of the building in the event of a fire.” This was despite the rule that tenants are not to leave the rooms in event of an alarm. Elmcroft was sold. The new corporate folks appear to want all aides to assume a concierge role in an independent living model.

I’m now at a Emerald Trace, and Nancy is getting our condo ready to sell. Getting it sold is the key for us to have the flexibility we need. We resumed our Bible study with four new members. We we we being led through the book of Proverbs by Mark Roberts.

One more really good thing happened this Summer, that being the celebration of Nancy and me and our Golden anniversary. While our date is actually in December, we chose to wait.

Good thing we did! Despite my paralysis, I was able to stand and dance with my bride of fifty years (with à new therapy device Gateway had just received.) We made the local (and, as it turns out, National-slow news day) news, and got a posting on Facebook. 


That’s all for now. Thanks for checking in.

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