A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Monday, October 26, 2015

October update

Hi all,

Steve continues to progress physically and his mental/emotional outlook is, most days, resllient and strong.  His trust in God inspires me to keep on keeping on!
Latest achievements are more success in swinging his arm up on the wheelchair or bed and using the arm bicycle with hands strapped on.  This is with no therapist holding him erect!

We held a surprise birthday party for Steve here at Rosedale.  The activity staff was so thoughtful in setting up the room with fall decorations and tablecloths.  He was so happy to see everyone who came.  Thank you to so many others who sent cards....we enjoyed hearing from you:)  

We had a wonderful visit from one of his nurses from Drake, where he was for 13 months.  Erin had visited before and this time she brought us Panera dinner:)
She is one of the most compassionate nurses I have ever known.

Milwaukee friends Dave and Margo Hoffman were here for a couple of days and we had pizza outside in the courtyard.  They are like family to us.

We also had a visit from Bob and Sue Pinney.  Bob had a long ordeal with GBS also and now is recovered!  They were such an encouragement as they recounted stages in Bob's recovery and Steve nodded in recognition and asked a few questions.   

Our daughter Becky and granddaugher Diksha were here this past weekend.  Becky hadn't seen him since August and was so excited to see the difference in him!

Please keep checking back, we'll try to post more as we live life watching and waiting.

Nancy



Wednesday, October 7, 2015

This entry was written by the man himself- Steve Parsley!


Well here I am, nineteen months after I first went into the hospital with GBS.  I think I am getting better incrementally, day by day, at least that is what everybody around me tells me. The real thing I'm doing is laying in bed waiting for my nerves to reconnect.  I am experiencing several hours a week of therapy to keep my muscles limber and ready for when the nerves do reconnect.

However I am well entertained by the many visitors and those who communicate with me via email.

I am grateful to all those who have prayed for me.  Prayer works! I have gone from not even being able to lift an eyelid and having dozens of hoses running in and out of me to being almost normal and waiting to go home anxiously.

I hope that the prayers will continue.  I need it.  I also need prayers that  will reach the people serving me with my message of Christ and what he has done for me. 
Thank you so much for reading.  I will try to add more later.

Steve

Sunday, October 4, 2015

Little birdie here

Steve's birthday is Oct 16th.

Cards can be sent to:
4250 Glenn Avenue
Covington KY 41015

Friday, October 2, 2015

Millimeter


Sorry its been a stretch between blog entries.  To be honest, I haven't posted in part due to my emotions and energy being so up and down.  As the Bible says, the battle is in the spiritual realm as we fight against discouragement and impatience. Our faith is being strengthened as we persevere, each day calling for a new supply as we trust God to see us through.

We are literally waiting for nerves to grow one millimeter at a time, yet the growth is invisible, UNTIL it shows up in another muscle movement that is new.  And there are!  Steve's therapists notice the most as they feel new muscles firing.  Lately, with the aid of a brace they found and holding Steve's arm up at the elbow, he is able to feed himself.  

Steve has mastered the ipad and mouth-guided stylus so he can use the internet to do things like prep for our Bible study that he leads there at Rosedale, and visit his train sites.  He has cleaned out his inbox of about 6,000 emails....imagine the patience:)  Steve would love to get emails from you and his address is: slparsley@gmail.com.  He can answer them, slowly, picking out one letter at a time with the stylus!

Steve will be guest author at this site soon so do check back!  Thank you for your continued support.

Nancy