From Steve:
Where on earth did Summer go? It seems like just a few weeks ago, we were moving into our apartment and sorting through clothes to find enough duds to wear in the upcoming winter. Now we are doing the4 same thing.
The addition of a shiny new ramp to the front door at the condo has made it possible for us to spend time there. Previously, we needed several men to help get the wheelchair in. Either that or the National Guard to get me in. We may still need them for me to get into the lower level where my trains are. Currently I can’t get to the lower level. But I’ve enjoyed occasional dinners Nancy has been able to prepare at the condo.
We reached the end of our outpatient therapy as far as Anthem is concerned. However, we are impressed so far with the in-home therapists. They know their stuff! They are willing to look into braces with me that would provide a moderate level of support by locking my legs.
The other area of concern needing your prayers are my hands and forearms. Having spent far too many hours searching the ‘net’ for solutions that may help, almost everything I found was linked to research efforts or targeted at amputees. I am not ready to cut off a hand or two just to become more attractive to the prosthesis market!
On a brighter note, the Wexner Center at Ohio State University in Columbus has been named a
GBS Center of Excellence. The GBS-CIDP Foundation is an international group that follows, supports, and in some cases, intervenes on behalf of survivors like me. Nancy was able to get a December 4 appointment with a neurologist who specializes in GBS. We have been looking for such a doctor for years. Please pray for this development and that we won’t be disappointed with the results.
GBS Center of Excellence. The GBS-CIDP Foundation is an international group that follows, supports, and in some cases, intervenes on behalf of survivors like me. Nancy was able to get a December 4 appointment with a neurologist who specializes in GBS. We have been looking for such a doctor for years. Please pray for this development and that we won’t be disappointed with the results.
From Nancy:
We are grateful that you checked back on the blog…..the entries have been far apart and in a way reflect the journey right now…..just keeping on keeping on, cheering each other on and trusting God for further healing. Steve typed this entire blog with his mouth stylus, letter by letter on his ipad. Just one example of his patient determination to stay in contact with you all😊 He also emails, uses FaceBook, Face Time, Skype. So it would be most welcome if any of you could drop him a note or give a call (see addresses posted below). We also have a very good set up here at Elmcroft in Florence Kentucky for visiting! Please continue to check in!
Blessings,
Nancy and Steve
Steve cell 859-878-8542
slparsley@gmail.com
Elmcroft Assisted Living
212 Main Street
Florence, KY 41042
