A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Wednesday, January 24, 2018

New Year...New DIAGNOSIS?!?

Blog entry, Jan 2018

Despite the arctic cold wave we have been experiencing, it is finally starting to warm up - a little. In my book' 50° is still “stay inside” weather. Even Ole’ Bessie, our handicap equipped van, didn’t care for the weather and took a break to get her ramp door repaired.

In spite of this, we rented a much newer van and drove to Columbus for a new EMG/NCS. After the electro guy got a strange look on his face, he left to confer with my Dr.  After a couple of more tests, my Dr. announced that I didn’t have Miller-Fisher after all, but did have an even rarer malady called GBS-AMSAN. This variety of GBS attaćks the nerve, itself, rather than the mylan sheath that insulates it. Now, I am not a doctor, but have read online that my recovery will be longer (oh, joy!), and my Dr. needs to be a bit different with some special letters after his/her name.

That explains some of the deep exhaustion I have been experiencing. I do tend to sleep in a bit, and often take a nap after lunch. However, I am always in bed by 10:00 pm, which is far earlier than before I fell ill. Still, I find I am more tired than I was when I arrived here 16 - 17 months ago. By the way, the van we rented to go to OSU/Wexner had newer (by 18 or so years) components and 110,000 fewer miles than Ole’ Bessie, but rattled and shook much more than I expected. Besides, I believe I can put the much cheaper collector car plates on Bessie starting next year.

I can’t wait to get back to my Model Railroding hobby! TV has seemingly become a wastland, but a couple of shows are out there that I follow. I can’t explain why but I enjoy a “reality” show about grown, wealthy men that spend all their spare time digging holes in the mud. Also, Rick Thomas comes over every Tuesday, and we watch a show that I think has killed more marines than have been killed in the last few wars we have fought.  “The Curse of Oak Island” and “NCIS” are silly shows, based on the premis of each, but we are drawn in by them, and normally drop everythiñg to watch new episodes.

Nanćy and I took out Prime and Netscape subscriptions, and have started sleeping our way  through the Civil War and Over America documentary series. We find them very relaxing - almost narcotically so.

Our grandson, Joshua, accepted an internship at the local aquarium, and is planning to work at Cracker Barrel near our condo. So he is taking over our condo for the duration. We really enjoy beiñg able to see him regularly, and he has been especially helpful.

Well, I guess it is time to wrap things up for this posting. Nanćy has covered me up in my chair with a blanket, which can only mean one thing: NAP-TIME!

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