A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Sunday, January 22, 2017

Turtle or Rabbit? - A post from Steve

Here's a blog posting:



Blog Entry for Jan 21st 2017

Over the past several weeks, I have been learning how to drive (a wheelchair, of course) all over again. This is a brand new chair that I will keep to facilitate my mobility. It has displayed a couple of problems, so far. It's recline feature doesn't work, and it still needs set up for TV control, as well as integration with my cellphone.

Still, it is good to get out and around, and it serves that purpose well. The chair has five speed profiles. I have thus far tried the first two; turtle, and rabbit. Turtle starts to move at about 0.2 mph, and goes 1.2 mph at peak. Rabbit is essentially twice the Turtle mode with its top speed at a blinding 2.4 mph (a tiny bit faster than your average walking speed - and Yes, I realize we live in a "home with long halls").

I have been afraid to try the "Off-road", "Commuter" and "Oh, my gosh!" settings, but they are there for the bold to try. Absolute top speed is about 7 mph, which seems really, really fast when you set as close to the floor as I do. Range, without a recharge, is about 14 miles. Not enough for a vacation trip, but good for a joyride to the mall.

We are looking forward to going home to our condo, or possibly moving to a unit closer to town. That probably won't happen before Summer, but we are starting our research along the issues of handicapped accessibility. On that point, have any of you noticed how is many doctors' offices and hospitals are 
substantially un-accessible? As a licensed engineer, I am, perhaps, overly sensitive to this issue, but now that I have become wheelchair bound, I really understand the laws and standards that grew out of the ADA.

Changing therapy providers is another activity that is consuming us. We were using a rehab unit near one of the major hospitals here, but I think enthusiasm fell off when they realized how slow and incremental my recovery could be. The newer unit is closer to the apartment unit we are living in, and seems a bit more enthusiastic about my prognosis.  Time will tell.

Aside from that, I have been improving and getting some motion back in my hands and feet. I still cannot stand or use a walker, and my arms and hands, are still unable to be used, but we have detected some weak muscle activation that keeps us encouraged

Nancy has been a real trooper through all this, despite having her own heart and medication issues. Fortunately, we have a great group of doctors, friends and supporters that are always at the ready to help. We can only pay this forward, as we move on - I sincerely hope none of you ever need the type or amount of support we have received. Thank you!

Well, that is all for now. I will try to provide another update shortly.

-- Steve
Sent from Gmail Mobile via my iPad

Thursday, January 5, 2017

January 2017

Happy New Year to all our followers who checked back in after a long period with no posts.  Thank you for walking with us still!

For a while I had some issues with my heart and went to the hospital in November where I had 7 lb of fluid siphoned off. I was walking only about 20 steps before getting out of breath. Now I have gotten a good deal of my stamina back and will start cardiac rehab this month. 

It has been, and continues to be, a big adjustment to community living.  Elmcroft has a group of aides who help Steve with dressing, transferring to another chair, showers and getting into bed at night.  In addition, several others come in during the night to help him get into another position in the bed.  They have the best attitude for a very physically and emotionally demanding job. We have a pretty close relationship with most of them by now.

When Steve "graduated" from Rosedale inpatient rehabilitation, we were so glad to be living together again!  We underestimated the task of "syncing up our lives" again.  Steve remembers virtually nothing from the first two years and I lived a solo life as visitor, running the household and acting as overseeing "case manager" of Steve's care.

We are getting out together now several times a week in the van we bought and Steve's new electric wheelchair, which we got through Medicare.  He can go right up the ramp and back down by himself, saving the need to find help for pushing him up the ramp.  We long to visit the condo together and hopefully he will be able to get in the door with a portable ramp we bought.

We are thankful to be at Elmcroft where Steve can get so much daily assistance.  Our prayer is that Steve's hands and feet will begin working again soon and that we can return to our condo or another one more accessible.  We appreciate your continued prayers as this leg of the journey has its own challenges to our adaptability, patience and faith.

Love
Nancy and Steve