May and half of June flew by, as it probably did for most of you! We had a family wedding on a riverboat, our oldest grandson's high school graduation, a foot surgery for me and Steve's aunt and uncle visiting from California for a week. Becky came down for the weekend with daughter Diksha, and is visiting Steve as I write this.
Tim is living here during the week for eight weeks this summer, going home occasionally on weekends to Ft. Wayne. He is working on another mural for ArtWorks Cincinnati. (Main Street! Check it out!)
Steve and I are striving to move more into the realm of "what life used to be" before GBS. He continues to work hard in therapy and they often have to tell him to rest in between sets. With two therapists help, he stood up in the parallel bars this week, for six times, a minute each time. A new record. They are using pulleys to help him manage utensils for feeding, with his hands tied to pulley grips. I am amazed by his humility and patience as he learns to feed himself again.
The van is fixed again and I've been able to take Steve to church several times and with the help of friends he has gone to two picnics. Tim and boys carried him in his wheelchair into the house for Father's Day and we had a cookout. He stayed about 7.5 hours and thoroughly enjoyed just a quiet Sunday afternoon with family. Since he was also able to attend church that morning he was gone from Rosedale about 10.5 hours! A new record for stamina!
As you can imagine, Steve longs to come home for good, but the cost of enough help to meet his current needs is prohibitive. We are close to settling on an interim living arrangement where we both can live in a kind of assisted living apartment with Steve receiving the highest level of care the facility offers. We hope that arrangement can carry us over into more of the kind of life we used to live, until we can return home to our condo once he is further healed.
We so appreciate your faithful reading of the blog and your prayers.
Love,
Nancy and Steve
