A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Wednesday, May 18, 2016

May update by Nancy

Hi blog readers!  The last month, we've been amazed at the inventiveness and determination of Steve's therapists to find ways to help him reach next milestones. They have rigged up a pulley system which supports his arms in the right movements to begin to feed himself, even down to getting a magnet for the bottom of the plate so it will help pull the fork down to do the scooping motion.  They have supported (two people) him in standing between the parallel bars and he has stood for up to 2 minutes at a time.  

You may remember that about a year ago, sitting on his bed for that amount of time was a victory.  His wheelchair use at that time was also rare.  He now stays most of every day in his motorized chair and you can often find him kicked back in the recline position, taking a little snooze almost anywhere in the halls or outside:)

We are two steps forward a half a step back in getting independent in the van we bought.  We have enjoyed going out to church several times, eating out (in the van) and taking drives.  We still needed help getting him up the ramp that pulls out of the van.  Recently, Sam Slayden installed a winch system in the van, which pulls the wheelchair up, requiring less muscle power.  (I have none!)The goal is to be able to go out by ourselves and broaden our travels around town!  Currently the van, we call her old Bessie because she creaks around, has a broken ramp/door and must go back to MC Mobility this week for repair.

I continue to research where Steve can go when he leaves Rosedale.  There have been a few disappointments and a possibility. One facility we liked can't take him as long as he needs two people and a transfer board to be moved from chair to bed, etc.  The other facility we thought was the one told me that he must be able to feed himself....even if I live with him.  State of Kentucky laws.   Even in the midst of all the calls and visits I make, I know God will lead us to an answer, just as He did when we found Rosedale..

I've recovered from my fall in March:)  Next on my agenda is surgery on my toe that didn't heal correctly during last June's surgery for all toes on my left foot. That's scheduled for this Friday, May 20th. Ugh.

Your support and prayers are crucial as we stay the course.  There are quite a few hours of discouragement, more for me than Steve it seems.  He continues to amaze me and many others with faith that is bearing fruit of peace, patience and perseverance.

Thanks so much!

Nancy and Steve