A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Tuesday, November 17, 2015

Community

Community..... only lately have we begun to understand that the fellow residents are now our community, however long we are at Rosedale.  And there is much to give and gain if we just notice and take the time to learn names, to smile and say good morning, to share our dog, Charlie.

The staff is easy for us to appreciate....they are so skilled at caring and responsive to unending needs.  But the residents are easy to look past.....the are also in wheelchairs,and eye contact takes an extra effort. Because they are usually "old" and some look "vacant" or depressed it is easy to not want to engage.  It might feel awkward or take too much time.  The conversations we have taken time to have remind us that "they" are us, just with more experience with life and physical challenges that would put anyone to the test.

Steve and I attended the Rosedale Veteran's Day program and it really brought home how much we stand to learn from our community.  Picture a row of mostly WW II veterans, all in wheelchairs, singing patriotic songs, listening intently to the program and saluting where they could.    It was the first time I had seen one of these men widely open his eyes and really "come alive."  It was very moving and we were proud that Steve was included in the program and the honor.

Many of us dread the possibility that we will be in one of "those places" when we get old.  It might help us fear less if we move toward those who have taken on that "assignment" and learn from them how to accept limitations with grace and dignity.

-Nancy and Steve



Tuesday, November 10, 2015

November update

Hello again!

In the past two weeks, Steve has been working hard on the machines in the therapy gym.  He has regained a good deal of strength in his upper arms and has progressed to over 175 rotations on the "arm bike" with his hands strapped on.  He also just yesterday got to use the leg pedals, and while he couldn't yet propel them all the way around, he rotated them back and forth quite a bit.  Trunk strength is continually improving and he can shift around more in the wheelchair.

We went to a new neurologist this week and he is assembling the picture of where Steve has come from and assessed him thoroughly.  It think he will be a good ally. Once again, no doctor can predict the length of time or extent of recovery for Steve and this doctor feels it could be up to a year or year and a half until we "see where we are."  Another chance for Steve to show another doctor how he can "beat the odds!"

Steve decided to purchase a piece of equipment that will allow him to enter our car using a sling and this metal mechanism called a multi-lift.  We are eagerly looking forward to its arrival somewhere around the 20th.  Then we should be able to go out together any time for just a drive or to a destination!  Stay tuned for more news of that development.

We appreciate so much each of you continuing to walk with us through the blog and your prayers.

Nancy and Steve