A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Saturday, December 26, 2015

Merry Christmas!

Hi everyone,
We write from the other side of Christmas and hope yours was full of hope and blessings.  

What a difference from last year, which Steve doesn't even remember!  From the struggle to breathe on his own and once in a while sit in a wheelchair to being able to attend church on Christmas Eve this year! Though he came in his wheelchair, it seemed like a miracle to sit beside him again at Lakeside Christian Church.  

We had Dave Giegler help us get him into the multi-lift and the car, along with stationing the wheelchair on the trailer hitch. We have found that, at least for now, we need two people to help this happen. I could not help (more on that later), so one of our therapists, Christy, offered to meet us at Rosedale and go to our church with us, bringing along her family.  She was there with Dave for loading, unloading, loading, unloading.  Amazing!! Thank you for making this happen for us, Christy and Dave!  It means so much.

After church, Sue and Dave G. brought over a Christmas dinner to Rosedale.  We ate downstairs by the tree and Sue served us prime rib and fixings!  I brought sweet potato casserole and a pumpkin pie that suffered from riding around in the car to church, etc. before it "set."   These friends made a Christmas Eve one we will remember fondly always.

This last month has been eventful.....both celebratory and stressful.  I'll bet you can relate.  Two groups of friends came to sing carols and bring goodies to the residents in our wing.  It was heartwarming to see people sing that looked like they were going back in time and others who could barely speak mouth the words.  
Thank you, dear friends!

Also this past month, we had our trials with the multi-lift for the car.  We had just received it back from the manufacturer (made an adaptation) the day before we had an MRI appointment at the nearby hospital.   We confidently (Steve) and uncertainly (me) put it into the car, loaded and swung Steve into it and loaded the wheelchair into the trailer hitch.  35 minute operation.  Here's where I believe God stepped in, knowing we were in over our heads.  My friend, Sandy, called that morning and said she wanted to come to meet us at the hospital, saying she felt a "nudge" to offer.  I said "thanks and do come if you wish but you probably won't
have anything to do."  Wrong.

When we arrived at the hospital, Sandy got another wheelchair as I couldn't dislodge ours from the hitch.  Then she held it while I swung Steve out and....the multi-lift came off the door hinge and he dropped!  Half into the wheelchair and the rest suspended between chair and door.  While I held his legs and tried to stop his slide out of the chair, Sandy summoned help and three men helped get him enough into the chair to make it to the MRI station.  You can imagine the helplessness of Steve (who stayed calm) and me (who didn't).

Once he was in the MRI, I began worrying about how to get him back to Rosedale.  I wasn't about to use the lift again and the local handicapped bus, RAMP, has told me they weren't available for us that day.  I called Rosedale and no one could come.  I decided to try again (5 times) to at least get his wheelchair off the hitch and finally succeeded.  The angle I have to be at and the force to pull the lever was too much.  So I got his chair to MRI in time for him to get off the table onto it instead of the loaned one.  Then, God sent a bus!  You may or may not believe this is possible, but we know He can and does. I looked out the hospital window and saw a  RAMP bus.  They don't just park all over Northern Kentucky.  They were there to pick up another person.  I ran out and asked if Steve could ride also.  After some calls, they said yes!  The lady that was being picked up was late showing up and Steve appeared just as she did.  I was so relieved.  Thank you, God!  You knew in advance that we needed help.  

"Before they call, I will answer." -Isaiah 65:24

We are looking forward to 2016 and Steve coming home ..... date TBA.

Happy New Year!

Love, 
Steve and Nancy

Wednesday, December 2, 2015

Thanksgiving

Hi, everyone,
Thanksgiving for us was one to always remember, and we hope yours was full of blessings also. We gathered at Kristy and Patrick Rickerts (Flora's sister). Steve got to come to the family dinner and traditional talent show!  His talent was doing well on a long car ride and being able to sit in his wheelchair for about 7 hours.  We all were celebrating this milestone, as last year he was still getting the hang of swallowing and still tied to a ventilator.

We had the manpower to get the wheelchair lifted out of the trunk and into their house with Steve in it, thanks to Patrick, Tim, Alex, Joshua, Finn and Aidan.  Then the reverse process as we headed back to Rosedale.  We recently bought a multi-lift piece of equipment that transfers Steve into our car from a wheelchair.  I am learning to operate it myself (see picture on sidebar of Steve ready for our first trip out alone together:)  We just ordered a wheelchair lift to attach to a trailer hitch, as I can't lift the chair by myself.

The day after Thanksgiving, we got to take a long-awaited trip to the condo with the same family manpower.  Steve had never been to the condo after we were moved in and has still never spent a night there.  It was such a sweet time of family, home and pizza!  See all the pictures Flora took of this happy event on the sidebar.

Prayers, please, for the permanent move home for Steve.  He needs to be able to transfer from wheelchair and use his hands and stand for a few seconds first. Thanking God for how far he has come and trying to be patient and trusting for the next steps.

Love,
Nancy and Steve