A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Saturday, March 11, 2017

Day 1,096

I guess it has been a couple of months since the last of my blog posts, which means I should get started and let everyone know what we've been up to.
To begin, I am making frieñds with my new power chair, but not without going through a fèw trying moments. The speed control via the joystick has been the biggest challenge to me and my assistañts. It seems that it is much “touchier” than anyone expects, thus creating some very exciting moments. But several of my aides have learned to drive it, and are now chiding those that are running into things.
The joystick handle is shaped like a football goalpost. Once I get my hand on it, I'm fine. However, the handle broke, leaving me with a button to steer with. It's a good thing that my friend, Rick, was able to repair the original. I think the administration here was about to set me and this chair out on the curb.
I believe Nanćy posted that we moved to Elmcroft for assisted living. Well we have moved again, only this time it was internal to the facility. We are on the second floor, now, giving us better access/egress to the facility, without needing elevators to get in or out. It is, also, easier to deal with our Charlie "the dog", as he has become known to distinguish himself from Charlie, our beloved maintenance supervisor. The room layout is a mirror image of our previous unit, but I think it has Charlie "the dog" confused.

Since I last posted, I have started with acupuncture to help wake and stimulate my nerves. Frankly, before the treatments, my “needle-phobic” body sounded the alarm, feeling it didn't need more stimulation, but we proceeded anyway. Last month, I had my third treatment. They put a dozen or so pins in my legs and arms, and then connected me to a pair of boxes that were set to shock the heck out of me.
They even put a needle in the center of my forehead (but friends from our Bible Study assured me that this was done just for the doctor’s benefit, to see how far she could push me.)
The therapy seems like it helps a bit, but its effects wear off in a couple of days. According to the Dr., this is normal, and it is taking longer to wear off with each treatment. Theoretically, it will get to a point that stays with me, and I won't need to stop, periodically, for a fill up.
We have started a study by John Eldridge on the power of prayer. It is an excellent study, directly from his new book "Moving Mountains" which is based on the Bible, itself. It has challenged me to restructure my own prayer life, and to pray for everyone that has been praying for Nanćy and me. I would strongly recommend this study to you all.
By the way, thank you for those prayers. Without them, I don't know where we would be. May God bless each of you with the fullness of His Spirit.
Steve