A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Sunday, August 3, 2014

Happy Belated Birthday, Mom!!!

Happy belated birthday, Mom!!! We talked and texted but this is your official blog shout out!! We are adding your name to the giant sheet cake of celebration! You, my sweet mother-in-law, are so good at celebrating others- I've witnessed firsthand the cards and kind deeds you have done for others- even during these past 5 months!- during the most trying and exhausting time in your life. We can't wait to celebrate YOU!! You are a very empathetic and wise person. Thank you for continuing to share yourself and letting us shoulder even a small part of your burden. We draw strength from your faith and the way you turn to God for each day's portion. You are oh-so-dearly loved!! (And all the blog followers shouted a hearty "Amen!")

Tim and I and the kids are on vacation this week and have been in and out of cellphone range. We got to catch up with Mom on the drive today. She was telling us the dramas of the week- Tuesday started rough with lots of emotions and negotiations of needs and learning to find health in the current season of chaotic living. This is an ongoing process and Dad is being more of a participant in the terms of negotiation. Prednisone is probably not making those conversations any easier.

Mom also filled us in on all of the highs- and there were many! Dad got to go outside on Thursday!!! (pictures and story to follow from Mom); she loved the birthday card and present that Dad picked out to surprise her with (more on this story later); Becky was down for a short but sweet visit; Dad's labwork came back normal; decision on a port vs new PICC can be deferred for another week; and Dad has been speaking more using a special speech cannula. My sister, Kristy, was able to converse easily with him and problem-solved quite a few resources and plans for easing some of his issues. (Thank you, Kristy!!) Also, Dr Krause has joined the blog! Welcome! Thank you for all you are doing on Dad's behalf. Please forgive any errors in medical reporting...we often find ourselves playing quite a bit of the game "telephone" to write these blogs.

Last night, Tim and I were camping in the Alleghenies and found ourselves walking back to the camper directly in the crosswalk of a momma bear trying to get to her baby cubs that were behind our campground!! I scattered and ran into the closest campsite but Tim bravely walked directly in front of the snarling leaf-rustling momma bear to get to our camper that was holding OUR 4 baby bears!! He then came back in the vehicle for me. We all 6 hunkered in the camper and listened to the baby bears cry for their momma and we watched her waddle through our camp and pick them up. Later in the night the bears returned and got into our stuff (plastic bin, chairs, etc). Thrillingly scary to be sure!!! Tonight we found ourselves going to a classy art in the park presentation of Mary Poppins in Upstate New York, surrounded by beauty and fancily dressed people (and us in our fanciest camping clothes). In this way we were struck by the GBS analogy...sometimes you fear you might get eaten by bears in the night that keep lurking and circling around the camper... But then circumstances change a bit and you find yourself surrounded by singing and joy and laughter.

Our prayer is that the bears stay at bay and the joy and singing continues to expound! Mom and Dad, you are so dearly loved. Watching you two together the other night, we all heard Lisa the RT, say, "You guys remind me of my parents. They have been married a long time but they still look at each other like every day is their first date!" So sweet and so true. We love you both!

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