A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Tuesday, August 26, 2014

Food! Glorious Food! (Update from Nancy)

Hi Everyone,

Thanks for checking in!

Steve passed a swallowing test this week! He has “graduated” from ice chips to pureed regular food! This means a real menu, a plate, and choices! His first meal was turkey and gravy and thickened orange juice. He ate every bite. It even looked like turkey in the way it was presented :) See picture on the right. It was so great to be part of this milestone! His swallowing has returned well enough for this and next his tongue needs to cooperate in order to be able to get some texture to the food. But, he is on his way! 

Steve also was asked to attend a meeting between Dr. Krause, the unit directors, Pat and Brenda, and Lindsay, the speech therapist. He sat erect in the wheelchair and used his voice as they discussed what the unit could do to continuously improve. He gave a number of well thought out suggestions, from both the patient and engineering perspective. I was so proud of him. The meeting lasted an hour and everyone listened so attentively and asked questions. We are thankful for this effort to give Steve a voice to help others.

Last week I mentioned I attended a church service where Willhem Nel, a GBS survivor, was the speaker. He was told he would never preach again! He now pastors a church in South Africa. I had told Steve about how his book, “Silent Adventure," affected me and he asked me to read it to him. We have had some very special moments and conversations as we continue through Mr. Nel’s account of God’s faithfulness during his illness and his ultimate healing.

More blessings of the week: nurse Tara buying me a pizza, two friends already on their way to visit when I called Sandy to ask if she could put the word out because it was a particularly lonely day for Steve, a quickly delivered new bed for Steve and a service call from the manufacturer of the bed ordered by Pat, just to make sure it was working as well as it possibly could. Things like this happen daily and remind us that we are surrounded by love -- God’s love through people. This week ended with a special “pop-up visit” from daughter-in-love, Flora, and Evy (our dose of vitamin E). Flora is helping Steve with his dinner as I write this.

Love, 

Nancy



2 comments:

  1. Steve, I'm rejoicing that you were able to taste real food today! With all the Thanksgiving meals we've shared together that simple plate sure does outshine anything previously served. Praying for your continued healing and looking forward to Thanksgiving meals to come.

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  2. WOW, WOW, WOW!!! So awesome. Praise Jesus! Thinking of you every day. Pat DiMartile

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