A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Sunday, July 13, 2014

A few famous people with GBS

A Few Famous People With GBS

Andy Griffith, American actor on The Andy Griffith Show and Matlock, developed Guillain–Barré in 1983
Rachel Chagall, actress

Joseph Heller, author, contracted GBS in 1981. This episode in his life is recounted in the autobiographical No Laughing Matter, which contains alternating chapters by Heller and his good friend Speed Vogel.  
Joseph Heller (May 1, 1923 – December 12, 1999) was an American satirical novelist, short story writer, and playwright. His best known work is Catch-22, a novel about US servicemen during World War II.

Franklin D. Roosevelt, U.S. president. In 2003 doctors concluded that Roosevelt”s paralysis, long attributed to poliomyelitis, was actually Guillain-Barré syndrome.

Len Pasquarelli, sports writer and analyst for ESPN

Markus Babbel, German soccer player

Serge Payer, Canadian-born professional hockey player. After battling and overcoming the syndrome, he set up the Serge Payer Foundation, which is dedicated to raising money for research into new treatments and cures for Guillain–Barré syndrome.

Morten Wieghorst, Danish soccer player played for Celtic and Brondby

Lucky Oceans, Grammy Award winning musician

William “The Refrigerator” Perry, former professional American football player with the Chicago Bears was diagnosed with GBS in 2008.

Tony Benn, British politician.

Ambrose ("Rowdy") Gaines IV (born February 17, 1959 in Winter Haven, Florida) is a former American swimmer, U.S. Olympic Hall of Fame member, Olympic three-time gold medalist, and member of the International Swimming Hall of Fame.

Samuel Goldstein, American athlete and Paralympian.[27]

Luci Baines Johnson, daughter of President Lyndon Johnson and Lady Bird Johnson. Diagnosed and under treatment for Guillain–Barré in April 2010.

Hugh McElhenny, Pro Football Hall of Fame inductee and former professional American football player with the San Francisco 49ers.

Norton Simon, American industrialist and philanthropist.

Hans Vonk, Dutch conductor.

Danny Wuerffel, 1996 Heisman Trophy winner from the University of Florida.

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