A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Monday, January 12, 2015

January 12

Steve has had a good week.  He is tested every day on how much he can breathe in and out and has been doing great, steadily improving.  With this objective measure, Dr. Krause and pulmonologists decided to give him opportunity to try the trach collar once again.  It has been since mid October that he was on it, before he got the pneumonia and had to spend time in ICU.  Today he was on the trach collar 2 hours when I was there and was still on it when I left.

Steve also has done very well in his PT/OT sessions this last week, hitting 30 minutes sitting on the side of the bed and doing modified “pushups” where he leans back against the therapists hands and then pulls himself upright while sitting on the side of the bed.
Today I was shown two exercises to help Steve with his legs.  He is able to fire up enough hip/thigh muscle for me to be able to help him bend his legs and move them a short distance side to side.  I hold them, but the movement is him

He practices trying to fire up muscles in his forearms and hands and sometimes we see small movements.  Praying for more!

Thank you so much for your continued prayers and continuing to follow on the blog.  The visits are also so welcome.  I’ve needed to cut back on visiting every day and now take two days per week to “take care of myself.”  

Love,
Nancy and Steve

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