Updates for family and friends on how Steve Parsley is recovering from Guillain-Barré Syndrome
A Simple Timeline
A Simple Timeline...
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.
Tuesday, April 1, 2014
Update from Becky and Nancy April 1
From Becky-
Dad had a 6th episode of bradycardia this morning as they replaced a tube in his trach called the inner cannula. But this time, his heart stabilized (and quickly) without intervention. He has been stable since.
My mom and I have slowly been catching up on our sleep. The hospital gave us a "sleeping room" which is a regular hospital room that families can reserve as a resting spot. We try to request it each day and its free!! I feel like we are members of this hospital! Lol-like we have ownership in it, and that they should consult the Parsleys for any major decisions the hospital makes...budgets, improvements, etc ;)"Our "belongings" are spread all over! LTAC, 2south(sleeping room), dad's room...we've moved in ;)
From mom:
Neurologist this morning said good to establish a plan/ pattern regarding being bedside. Said hard as it is I should be predictable in leaving and let him know where going and when I'll be back. Said then he can know passing of days and can anticipate. Also he can be free to not be interrupted or feel he has to be "on" for me. He said we must give him the time he needs and expects things will return tiny, sometimes unseen and randomly. He has no fever and still getting antibiotics.
Dr Lanka said he can return to LTAC when social worker receives re-certification, which is in the works.
We might have a touch of sleep deprivation... Becky, this morning, "Where are my clothes? Oh they're on me!"
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