A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Sunday, April 13, 2014

Girl, you are getting on my last nerve!

Tim says I need to explain what happened with nurse Ruthie. I wish I could act it out for you, it is so much funnier. Basically, we irritated her by showing up in the middle of the night. (We drove down urgently from Ft. Wayne and told Nancy we would take the night shift. It had been a long ugly procedure-filled day) In all fairness, we did disregard the "only one person in the room overnight" rule- we tried to follow it (Tim slept in waiting room for part of the night) but it really took both of us to decipher his needs. It didn't help that we also caught many mistakes (a drainage tube completely smashed under the wheel of his bed, his boot not repositioned once in 8 hours, his feeding tube turned off and not restarted until we pointed it out, she tried to give him pain medicine after 1 hour and 15 minutes when the order was for every 4 hours, and she completely disregarded his ability to communicate and would just reposition him and walk away - never asking "Does that feel ok?" "Are you comfortable?" - usually he wasn't and we had to finish the job. Dad had a lot of things that he needed that night and we had to do a lot of spelling and then alerting the nurses (He repeatedly asked to be suctioned). We were nuisances, but we tried to be sweet about it. We asked politely and tried to acknowledge that we were being the "needy room."

Then at 5am, Tim peeked his head out, looked toward the nurses station, and then turned around and told me, "Flora, there is something happening out there! There are a bunch of cops!" Tim then caught the eye of one of them and asked him, "Should I stay in here? Is it safe to come out?" They said, "Actually, Sir, if you could step out here." Ha! We had no idea they were there for US!! That part of the story is never gonna get old!

Five cops were there to escort us off the unit. (It had been a slow night but something started happening while they were talking to us and quite a few of them took off) Earlier, because it was after hours when we arrived at the hospital, we had had to go through the metal detector. The cop scanning my belongings asked me, "Ma'am, do you have scissors in your purse?" I said, "Yes, I do. You never know when your eyebrows might get a little crazy!" He had smiled and let me keep them but when he saw that it was me that they were called to remove, I'm sure he was thinking, "Watch her! She is armed!"

So there we were, completely surprised that we were about to be forcibly removed from the unit by all these armed cops "so that the nurse could do her job." I start getting fired up because I'm thinking "Are you kidding me? WE were the ones actually providing nursing care tonight!" I started getting all wild-eyed and crazy looking. Tim kept putting his hand on my shoulder saying, "I've got this, Flora." He was trying to project the fact that we were sane rational people and I was definitely not helping his case. I told the cop, "We would be happy to go and get some sleep if you are willing to go stand at his bedside and slowly walk through the alphabet A-B-C-D until you get a word, then a phrase, and then let the nurse know what it is he needs."

Eventually, we talked to the resident in charge that night and he very quickly realized that we had legitimate concerns. We never saw hide nor hair of Ruthie again, and we were NOT asked to leave the unit. We also spoke in detail with the nurse manager the next day and she apologized profusely. They did everything to make it right and we were very pleased with the outcome. We told them, "We want to be son and daughter-in-law, not bulldog and nurse." We love the times when we can sit back and marvel at the caring people who are doing their best to meet his needs. We will forever be singing the praises of the nurses who do their jobs with excellence - and there are sooo many! In fact, I have a "Caregram" ready to send in for his nurse, Brittany, and his RT, Brandy, from his time at St E. They were amazing and deserve to be recognized.

So you've heard the story once but ask me about it in person. It is too fun to act out Tim's response!

1 comment:

  1. I'm sooooo glad you finally told this story. Sounds like Ruthie needed to find another job that she enjoyed a little more. (P.S. We also had a meanie once in our own visit but one our of gazillions of wonderful medical personnel.) Thank God you were able to keep your cool and not get thrown out!

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