A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Saturday, April 5, 2014

Saturday, April 5th Update: GRAPENEHISODA

OK everyone, this is Tim posting - which means you now have an artist reporting rather than a nurse, so you'll have to forgive any medical misspellings or gaps in knowledge. There are many degrees of separation between art speak and doctor speak.  Thank you Flora for keeping everyone so well updated!

 I was able to travel down for the night and stay with Dad in his room. Mom and I are here now, waiting on doctors to make their rounds. Here is the update: 
- Bronchoscopy went well yesterday. They were able to get a lot out, but it did seem to leave him feeling pretty raw in his lungs last night.
 - Heparin is started, which will thin his blood some to prevent future clotting. Only negative with this so far seems to be that his face is stubbly and the nurses advised against shaving him (for fear of cutting his face, causing extra bleeding). So Mom's kisses will be a little scruffy. :) She rolled with it: "That's OK. We can go with the Duck Dynasty look for now!"
- His PICC line was switched to his other arm.
 - The night was uneventful, with Dad resting and the nurse being very attentive to both Dad and me (bringing ME an extra blanket. Dad stays pretty hot so they keep his room like an icebox, which he prefers).
 - This morning they have strapped an inflatable, vibrating vest thing-y around his chest (artist speak, not doctor speak) that is supposed to help loosen any gunk in his lungs. (10am: just did the vest procedure and he did great. No drop in any numbers and said it felt fine on him. This should help him keep things loose and better suctioned going forward)
- His numbers today already show improvement, and appear to confirm that yesterday's treatments are working: Temperature 98.7 and white blood cell count down to 18 (still elevated, but lowest it's been since this infection started and he had to go to ER. And 7 points down from yesterday!)
- Still not very "verbal," and has more difficulty spelling words with alphabet system. It's possible this is due to the medication he is on making him drowsy. Despite his difficulty spelling, he did just spell for Mom and me: "GRAPENEHISODA" Took us a moment, then realized he wants a grape soda (brand name Nehi)! He wants to taste something - grape soda specifically! Unfortunately, nurse says no due to possible drip/interference with trach. Instead, he gets a lemon mouth swab. Sorry, Dad. :(

 I also wanted to add my own huge THANK YOU to everyone who has been helping with my dad. In so many ways you have helped him by either helping my mom or Becky and me. It has become a kind of "pay it forward" thing: where your help to us has made it possible for us to pass that help along to Dad. When this thing first started, and I was driving with my mom between one place or another and several church friends were simultaneously mobilizing to help move storage stuff here or there, I told Mom that the most difficult part of moving to Fort Wayne was that we would have a harder time being readily available should something significant happen to them. We tried not to get our hopes up too much when they entertained moving to Fort Wayne to be near us, but I can't deny the disappointment when they didn't. That said, when driving around with my mom and already seeing the friends and church members flooding in to help however needed, I told her that I could see now just how loved and supported they are here. How, even though my sister and I wish we could be more present for every part of this process, we can see that Mom and Dad are in really, really good hands. Thank you for being such good friends to my parents. It means more than I am able to express.

2 comments:

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  2. Nancy and family...these blogs are so helpful. Thank you so much for keeping us updated so that we can be prayer specific. We pray for you often...PLEASE let us know if there is any more that we can do...Love, David and Merilee

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