April 11

A big welcome to Susan and Bob Pinney! Bob had GBS in 2008 and his daughter, Stacey (also a nurse!) kept a daily care page for him. I'm smack in the middle of reading through his journey right now. The similarities are plenty - Bob also was "one of the worst cases" and had plenty of awful complications. Since his recovery, Bob walks with a cane and has been on 3 cruises and multiple plane trips. Susan was able to visit with Nancy by email and phone today. Mom said, "She was already helpful!" (Plus, they have a 2-year-old granddaughter and an Aidan for a grandson. Oh, and they have family in Lebanon, OH) We are so so pleased to make their acquaintance. I told Susan "This isn't exactly a club you want to belong to, but when you are in it, it is nice to have people to stand shoulder-to-shoulder with."

Today's updates:

Dad had another bronch today. The nurse told me, "They wanted to do it so that he would have a comfortable weekend." 

Dad remains on Heparin as they are waiting for the Coumadin to get to therapeutic levels.

He is tolerating the increase in his tube feedings and remains at the goal rate of 85ml/hr.

The vent popped off a few times during his chest vest percussion. My sister Kristy said, "Where is the duct tape?!?" Duct tape fixed most things in Dad's pre-GBS world. 

Becky is back in town and staying bedside tonight. My phone is blowing up with updates even as I type this... She reports, "Dad opened his right eye enough that I could see his iris tonight. This is new! He also moved his head side to side several times about a fraction of an inch. The nurse tonight said that one nurse yesterday saw a definitive nod!"  

Dad said to Becky, "Should we move to condo" She is "Not sure if that means he couldn't remember the whole moving process or that his things were already there? Or was he ready to move this party elsewhere? Never got a clear answer." (Face it? Or Face itch?)