I told mom yesterday "His vital signs were rock solid in the night." She said "I like that description...so much better than stable"
Later that afternoon, we were happy to use those words to describe, of all things, his emotional state....
Mom arranged to have the palliative care RN and chaplain meet privately with Dad to see what he might be feeling. We taught them how to communicate with him and then we stepped out into the lobby to give him privacy to share. Honestly, Mom and I were so afraid to hear the results and Mom even said "I'm not even going to ask about the conversation because that should be confidential" BUT the RN and Chaplain came out to find us and they couldn't wait to tell us "He is good!!"
They asked him:
Are you sad? No
Worried? Yes
Worried about getting better? No
Worried about how long to get better? Yes
Worried about Nancy? Yes
Worried about condo? No
Worried about grand kids? No
Are you angry? No
Hopeful? Yes
Believe you will be healed? Yes
Believe in God? Yes
Believe in prayer? Yes
Are you getting your questions answered? Yes
Confused? No
Getting good care from RNs? Yes
Anything they can do to improve? No
Comfortable? Yes
Ready to go to rehab? Yes
You might be moving to LTAC soon, can the chaplain keep seeing you in LTAC? Yes
PT/OT have been here? Yes
What are you most afraid of? "S-E-Q-U-E-N-C-E"
Of events? Yes
Are you worried about how long for each part of the sequence? No
Are you as amazed at his depth of strength as we are?! We were completely stunned. It shouldn't be surprising, because it is consistent with his life and faith prior to this craziness, but we couldn't help but be fearful that he was cracking under the strain. Not at all. Rock solid.
And "sequence" of course he is!! He is a systems engineer. ;)
I drove to Cincinnati Monday night with my heart full of fear and grief and I'm leaving today full of hope and amazement. He is clinging to his faith and his faith is proving strong.
"The Lord is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge, my shield and the horn of my salvation, my stronghold" Psalm 18:2
(I just read this entire post to Dad before publishing-to get his approval. I wanted to make sure that I wasn't overstepping his privacy or putting words in his mouth. He gave me lots of approval with his jaw movements. Through tears, I told him how proud and amazed we all are.)
Updates for family and friends on how Steve Parsley is recovering from Guillain-Barré Syndrome
A Simple Timeline
A Simple Timeline...
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.
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