"Everything can be taken from a man but one thing: the last of the human freedoms—to choose one’s attitude in any given set of circumstances, to choose one’s own way.” ― Viktor E. Frankl, Man's Search for Meaning
Mom was able to sit down with the neurologist today and have a "comfortable conversation. It felt like we were discussing a person, not a patient" She asked Dr Rorick for his advice on how to handle those times when Dad makes statements about "getting out." He likened GBS to a prison term - said that sometimes they can be commuted but that you learn to pick away and cope each day. He said, "It takes as long as it takes. It isn't forever. There is an end. Each day is one day closer to better." This reminded Mom of Viktor Frankl's Man's Search for Meaning. (I think he realized at this point that he is in a whole new league with Mom - she has depth he has only just begun to tap). He encouraged her to provide stimulation and orientation to day and night. He was not a fan of using an electronic talking clock but instead encouraged her to just employ heavy use of "Good morning" "Good night" etc.
If you would like to send Dad a card with encouragement we would welcome your greetings and will make sure they are read to him. Cards can be sent to:
10775 Gleneagle Dr
Union, KY 41091
Good news-
~Last night's cannula change was great. HR only dropped to 64 for 3 seconds.
~WBC's dropped to 19.3 today
~His tube feedings have been restored to 70ml/hour- his goal! And he is tolerating it well!
Ongoing-
Dad had a drop in BP this morning during suctioning, but returned to normal following a fluid bolus.
Still awaiting word from Anthem on transfer to LTAC.
Becky returns home today. Tim will be in Cincinnati on Friday/Saturday.
Updates for family and friends on how Steve Parsley is recovering from Guillain-Barré Syndrome
A Simple Timeline
A Simple Timeline...
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.
No comments:
Post a Comment