A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Saturday, November 8, 2014

The news from ICU

This week has been rough going for both Mom and Dad. The cultures from Dad's urine came back + for MRSA so that has meant big gun antibiotics and contact isolation- anyone who enters the room must gown and glove. He will continue on antibiotics for one more week then will be cultured when he has been off antibiotics for 2 weeks and again at 3 weeks. If he gets 2 negative tests he will be removed from isolation.

Also, Dad has been on food and fluid restrictions due to the aspiration pneumonia. He has only been allowed one spoonful of ice every 20 minutes- crazy-making for all involved!  Although, this restriction looks to be loosening a bit as Dad passed a swallow eval this morning and has been approved for thickened liquids and his ice chip allotment has been increased to 1/2 cup per hour. They will do a more thorough swallow eval next week to see if they can return him to food food. The speech therapist and mom have both noticed more mouth engagement so reading his lips is getting a bit easier ( as in no longer impossible).

Weaning continues to be a mixed report. They have started weaning him again but he is not pulling the big numbers like before. He managed about 5 hours on Thursday and Friday-with those hours being divided into 2 sessions during the day. The Head of Pulmonology, Dr Scott, said that Dad's phrenetic nerve- the nerve that innervates the diaphragm, is still not engaging and that its repair and return of use is a "waiting game".

Insurance approval is again a player. The initial reply from insurance is that he is not allowed to return to LTAC (meaning the Drake unit where he has been for the past 7 months) and an alternate facility must be found. Dr Scott said that it is common for insurance companies to initially take a "short term and negative first look at a patient" when making decisions. We continue to pray for God to place him in the best possible facility (right now we trust that that is Drake) and are trying our hardest to look backward at all of the times logistical details have been worked out to our amazement, instead of fretting about the future. Much easier said than done.

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