A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Sunday, September 14, 2014

Super excited about Zeros and Ones - Geek Speak by Kristy Rickert

My sister, Kristy, is a computer wiz. She has been leading the charge to get Dad back on-line and out on the World Wide Web. Here is her blog about their computer adventures on Saturday...
After working with Becky and Steve and doing some additional research with the Invotek Safe Laser System, it became clear that its capabilities were primarily designed to act as a simple keyboard for spelling. Steve’s current system of pointing at letters on a poster board with a laser already accomplishes this for his purposes. 

Although some of Invotek’s end-users have used the system to access the Internet, we confirmed this was limited in scope and could be somewhat difficult due to requiring “split attention” (the user points the laser at the keyboard while trying to move the cursor on a separate monitor screen).  
So we started the search for a new solution – one that could give Steve the full ability to use his computer. Not quite sure what was available to know what we needed, the searches on Google may have seemed far-fetched. Some initial search results returned complicated machines with incredibly hefty price tags. Then, and I still don’t know how I arrived at the page, our prayers were answered and up popped a treasure-trove of software designed specifically to help people operate computers when they can’t use their hands. 
The main program, called “Camera Mouse,” was designed at Boston College and is being used successfully by people all around the world. It uses a webcam to track the movement of your head to control the mouse pointer on a Windows computer. Clicking can be done by making the mouse pointer dwell over a spot on the screen (after first turning on Clicking in Settings). 
The website for Camera Mouse includes a Downloads page that has dozens of links to software programs written by other people and companies that work along with Camera Mouse to allow users to fully operate their computers. They even have games for children. And . . . wait for it . . . they are completely FREE!!!!  
I was able to download and try many of the programs before deciding on just a couple to use to assist Steve. If you have a windows computer and a webcam, please feel free to download and try them yourself. It is fascinating technology! 
Here is the list of applications Steve now has available for his use: 
Camera Mouse 2014 – Main program. The latest version, which now works with Windows 8, just came out last month (August 2014). Steve’s laptop runs Windows 8.  
ClickAid - allows for right-clicking, dragging, double-clicking  
Midas Touch - a free onscreen keyboard program for spelling and speaking messages (this could replace the poster board and laser pointer) 
Click-N-Type virtual keyboard – an onscreen keyboard that allows you to use Camera Mouse to type into Notepad or Word or email or an Internet browser. Steve has add-ons that display the keyboard in bold text and uses a predictive word list. 
Aliens (Aliens and Paint) a simple shoot-the-aliens video game program. We used this to test Steve’s range of motion.
Today, Steve felt well enough to work with the programs. Within the first 10 minutes, he was adjusting some of the settings himself and requesting others. Then Nancy and I watched him open Internet Explorer and perform a Google search for “GBS.” For the first time, Steve was able to search on this illness that has taken control of his life for the past 6 months. It was a very moving moment to watch!

My husband, Patrick, asked if this means everyone can now start communicating with Steve electronically. I told him that it might be wise to give him a few weeks since Steve has 2300+ emails in his inbox to catch up on first. :) My hope is that initially, these new tools will give Steve access to the outside, and then in due time he’ll be ready to communicate back.

As a techie, I get energized by new hardware and software – much like a kid on caffeine – and today will be one I will long remember! Thank you, Nancy, for allowing me the opportunity. Your help desk is available!

1 comment:

  1. Once again, WOW!!!! And Praise The Lord. So exciting!!! Thinking of you every day, Pat DiMartile

    ReplyDelete