To all of the wonderful healthcare providers who are reading this blog,
THANK YOU! THANK YOU! THANK YOU!
Thank you for all the times you have patiently turned Dad and helped him find comfort.
Thank you for all those times that we come to the doorway and report "He needs..." and you come to take care of it.
Thank you for celebrating with us.
Thank you for grieving with us.
Thank you for keeping him clean and comfortable.
Thank you for working together as a team.
Thank you for suctioning him, medicating him, helping him sit at the side of the bed.
Thank you for taking the time to spell with him.
Thank you for emotionally investing in our family. (Dr. Krause, your tears did not escape my notice the other day. They mean the world to us. Thank you for being a person and not just a white coat.)
Thank you for working on holidays and weekends and overnight and extra shifts!
Thank you for problem solving and finding answers to the challenges that crop up.
Thank you for taking care of Mom.
Thank you for welcoming Charlie to the unit.
Thank you for answering our endless questions.
Thank you for addressing issues that aren't medical but are vitally important - like getting him out to enjoy the sunshine - we know that taking him outside takes a lot of planning and man power and we are sooooo appreciative.
We notice your actions and we are very grateful! Happy Labor Day!
Flora and Tim, Becky and Alex
I asked Mom, via text, if she had a couple of thank yous she wanted to share. I very quickly got back this long list. I'm just gonna post it the way she sent it. Sooo many people doing such good work!...
Tara bought me pizza. Tennile came into work thinking there has to be a way to get Steve outside today. Erin asked yesterday "Steve, was it a good day?" (He said yes). Respiratory therapists Dave, Frank, Frank (night), Bob, Julie, Tennile, Ann, Lisa, and others are always ready to help with all things breathing. (Too many staff to name as I'll leave so many out!) Dr Krause, Pat, and Brenda's dedication to making this place one of continuous improvement and going the extra mile to find a way to get an ophthalmologist consult, a new bed (twice!), neurology consult, etc. Then there is a rotating team of pulmonologists, warm and responsive desk staff - Donna, Denise, and Geraldine, Speech therapist -Lindsay, head of respiratory - Eric Hurd, OT and PT - Judy, Julie, and others, case manager - Chantelle, visiting docs from wound care, medication review, dietary, kidney team. And a tireless caring staff of PCAs, day and night. There are really too many instances of "Above and beyond" to count as I look back to Easter entry date.
Updates for family and friends on how Steve Parsley is recovering from Guillain-Barré Syndrome
A Simple Timeline
A Simple Timeline...
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.
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