A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Thursday, May 29, 2014

In his own words

We just said "So long" (which is Steve's favorite and customary send-off) to my parents and Nancy after their brief but sweet overnight visit with us here in Fort Wayne. They came to enjoy the 5th grade play "Aladdin" in which their collective grandson, Aidan, shined as the Narrator, and Tim's set piece (The Cave of Wonders) wowed the audience. The grandparents have since renamed the play "The Narrator visits The Cave of Wonders"

It was with a bit of trepidation that Nancy left Dad for an overnight trip. Thankfully, Rick and Connie Thomas stepped in to sit with Dad and keep Charlie. (Thank you from the Jr Parsleys! What a gift!)  Rick even helped Dad spell and send a special message. "Aidan, I know you will be the "star" Nancy, glad you are there. Love to you all"  See the picture of his selfie in the picture column---->

His message brought our entire dinner theater table to tears. This syndrome has robbed him of so much, including his ability to share loving messages with his family, because of the effort required to spell each word. They say that each person has only so many words to use each day (I think the joke is that women have like 100,000 and men only 10,000) and right now dad has to use his words to express simple and basic needs. Seeing his message helped us all see past the sickness and engage with our loving family member that is so often just out of reach.

We missed him and look forward to the day that he can come visit, eat some banana pudding cake with us by the pool, and watch Aidan's video with Evy on his lap.

2 comments:

  1. This post also brought tears to my eyes! Thank you God for the small things that feel so HUGE to us!!! ~ Tami Shirer

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  2. I am so glad that Nancy got to be with her family in Fort Wayne and that Rick and Connie Thomas were able to help out and so thoughtfully posted Steve's message for you all to see. Our thoughts and prayers are with you all!
    Sue Ann & Wally Walker

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