A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Thursday, May 15, 2014

Dream or reality?

Last night Tim dreamed that he was driving somewhere and his dad was riding along in the passenger seat talking and moving his arms.

Sometimes the bizarreness of the last 9 1/2 weeks (Can you believe it has been that long?!) feels like an awful dream that we just can't wake up from. This feels like an altered universe with time that moves slower and interactions that are scattershot. Even Dad has admitted that he is disoriented at times and struggling with hallucinations. Hallucinations during hospital stays are pretty normal - time is altered, sleep is upside down, medications make you groggy, and specifically in Dad's case - sensation input is minimal. He has been relying on his sense of hearing primarily with few schedules (seasonal, weekly, daily), different tastes or smells, or changing visual clues to orient him. Having visitors and Mom nearby to talk to him about things that are real keeps him tethered to reality. We all need that - I was sleepwalking last night and needed Tim to reorient me to where I was.

I plan on spending the afternoon rereading the CaringBridge page that Bob Pinney's nurse daughter, Stacey, kept for him while he was hospitalized with GBS. I want to write down the timeline of events that Bob and Sue encountered on his way to health. So much of Bob's story is similar so far that it will be nice to have a roadmap of sorts. I specifically remember the story of how Bob was acting strange and agitated and told them to "take the money." Weeks later he was able to tell them about a hallucination he had where he thought they were all in the middle of a bank robbery and he was trying to protect his family. We are so thrilled that Bob and Sue will be up from South Carolina visiting her daughter in Lebanon, OH, this weekend and are making time in their trip to visit with Mom and Dad. Having the hope of Dad traveling again one day is bringing lots of strength to his present situation.

Dad was able to try the sling chair yesterday, and lasted for 1/2 hour. I believe he got a chance to see out the window, providing a few more clues to his present circumstances - it is green and spring outside, he is inside a building on the third floor, etc.

Mom told me that when Dad asked about his phone and Becky gave it to him to hold, he was very adamant that it was not his phone. He kept insisting and telling them that his phone was light blue. I told Tim that story and he said, "His is! They only had blue iPhone 5c's when he upgraded!" Tim told Mom and she had already realized that and told Dad he was right. She took the cover off and showed him his blue phone inside that black case. Some things you just know, like your personal phone. ;)

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