Happy New Year to all our followers who checked back in after a long period with no posts. Thank you for walking with us still!
For a while I had some issues with my heart and went to the hospital in November where I had 7 lb of fluid siphoned off. I was walking only about 20 steps before getting out of breath. Now I have gotten a good deal of my stamina back and will start cardiac rehab this month.
It has been, and continues to be, a big adjustment to community living. Elmcroft has a group of aides who help Steve with dressing, transferring to another chair, showers and getting into bed at night. In addition, several others come in during the night to help him get into another position in the bed. They have the best attitude for a very physically and emotionally demanding job. We have a pretty close relationship with most of them by now.
When Steve "graduated" from Rosedale inpatient rehabilitation, we were so glad to be living together again! We underestimated the task of "syncing up our lives" again. Steve remembers virtually nothing from the first two years and I lived a solo life as visitor, running the household and acting as overseeing "case manager" of Steve's care.
We are getting out together now several times a week in the van we bought and Steve's new electric wheelchair, which we got through Medicare. He can go right up the ramp and back down by himself, saving the need to find help for pushing him up the ramp. We long to visit the condo together and hopefully he will be able to get in the door with a portable ramp we bought.
We are thankful to be at Elmcroft where Steve can get so much daily assistance. Our prayer is that Steve's hands and feet will begin working again soon and that we can return to our condo or another one more accessible. We appreciate your continued prayers as this leg of the journey has its own challenges to our adaptability, patience and faith.
Love
Nancy and Steve
Updates for family and friends on how Steve Parsley is recovering from Guillain-Barré Syndrome
A Simple Timeline
A Simple Timeline...
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.
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