A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Tuesday, May 19, 2015

May update (by Nancy)

Sorry its been a few weeks since I wrote. We've been learning how to navigate the new facility and there is quite a lot to learn! The emphasis of Providence Pavilion is to give Steve rehabilitation services while getting the supportive and nursing care he still needs. Drake's emphasis was to keep him alive and get him stable medically and they achieved it! Thank you again, Drake and Christ Hospital staff!

A great team of occupational, physical, and speech therapists are working diligently to coax Steve's nerves to find their way to the muscles. And while the nerves return in their own way (and time), the brain is also important in continuing to send the signals to dormant muscles. While we wait and pray for forearms, hands, and legs to "come back" we have seen much new ability in Steve's sitting up and being able to move his upper body in the wheelchair for hours each day, and muscles are getting stronger. He was given a new wheelchair type because he is able to hold himself erectly now and adjust his body.

Big news this week....he no longer needs for food to be supplemented by a feeding tube! One less pole stand and equipment in the room :) The speech therapist is monitoring his swallowing. (We did have an episode where choking resulted in a quick trip to St. Elizabeth ER. He went back on pureed foods for a few days but now is back to a normal diet :) She also is helping him get his "old" voice back and says that when the trach comes out it likely will return completely.

When Steve has visitors, they are able to "sign him out" (ask at nurses station) and wheel him down to the lst floor courtyard if they wish. We have done that several times and it is a wonderful shaded and sunny place where he can feel sun, hear birds, and see the sky. Feel free to come any time.  Therapy may happen late morning or any time from 1:30-4:00. You don't have to call but if you want to know when it is scheduled on a given day, you can call 859.283.6634.  

Thanks for checking in!

Nancy



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