A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Thursday, March 5, 2015

Tears of Joy

Very encouraging news to send along this week! Steve has regained the ground he lost during the hematoma setback of January into February.

He is off of most of the pain medicine and is much more alert and conversational. Visits with him are so much easier.

It has been determined by pulmonologists that he has the use of his diaphragm now and the breathing results he achieves are with the correct muscles, instead of secondary muscles which is all he had to use before. Yesterday, the pulmonologist said that he had “beat the odds” referring to his opinion of almost a year ago that Steve probably would not come off the vent.  He also praised Steve as a “fighter!” While he is still using the ventilator, his current goal is to be off it and on the Trach collar (just provides oxygen) 18 hours a day. They will raise it up as the daily numbers dictate. He has steadily climbed from 12 hours off the vent to 18 in the last week.

Yesterday, Steve got to get Hoyer-lifted into the wheelchair (last done in September) and we went rolling around the halls of the unit, carrying oxygen behind. It was so good for him to escape the room and the constant beeps of equipment.

Many thanks to friends who, over the past week, kept me able to visit the hospital by fixing our cars, loaning a car to me, and giving me rides. I also got to take that trip to refresh with family in Ft. Wayne. Thanks to those who visited Steve during those days.

Thank you all for prayers and other thoughtful help!

Nancy and Steve

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