Today was another day of Steve and me talking (no spelling!) and me just bustling around the room, doing things for him. Charlie slept nearby. We talked about things that are set up in the room that we can ask staff to help Steve operate. These things, like the laser-led internet access, the Bible on a cd player with headset, and various DVDs that can play on the computer could help Steve pass the time while he waits for further healing. He has so many hours to fill each day and night and renewing his mind is so important.
He is making decisions to hold off on meds when he is expecting me or other visitors so he can make the most of the visits. His mind is much clearer and he was able to articulate many questions and concerns to Dr. Krause in the last couple of days.
Steve sat up on the side of the bed with help for about 15 minutes, some of which he held himself. He was able to pull himself up to erect position from leaning to the side.
The pulmonologist has given the go ahead for him to get back to the trach collar up to 2 hours per day.
Today he moved his arms side to side, pushing from his shoulders and biceps. Quite a bit of movement upper arm to his elbows. He says he practices trying to move his lower arms and hands a lot throughout the day. He gets discouraged. It’s lonely work.
All in all, two very good days as we shared many special moments needing no words and feeling like we are truly in this together.
Appointment with neurologist next Monday. Tim and Flora will be there also. Prayers please for new insight, helpful information, and strengthened hope.
Thank you!
Nancy and Steve
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