A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Saturday, June 7, 2014

That sounds like answered prayer!

Update from Nancy: 
It’s only been a few days since we all have been praying specifically for Steve’s voice to return and for the swallowing to begin.  I’m thrilled to say that signs of both came just yesterday and today! 

The speech therapist has been trying a variety of things to see what might now be possible.  When he inserted a special diverter into Steve’s vent tube and asked if he could make a sound, he did!  Steve then was able to respond when asked to say “Hi, Bob” to the respiratory therapist.  His “Hi, Bob” was not his normal voice, but it was clear enough to be unmistakable. Today, we heard more, with the same adaptation of the vent.  He said “industrial engineer.”  Brad (speech therapist) then felt for the beginning of the swallow reflex.  Not enough to actually swallow, but could feel something moving in that muscle.  The speech session was rewarded with a little more of the coveted sherbet!

Brad also fashioned some lenseless glasses to which he attached a laser pointer.  He then made several charts with letters, trying to get the right size chart and letters for Steve to be able to point to as he moves his head.  He hopped up and down on a chair (Brad, not Steve) trying different heights and positions around the room for the chart.  Steve had some success, even though his eyes don’t track well together yet and we will practice a lot over the weekend.  This would be a real breakthrough as the spelling through head/jaw movements, one letter at a time and me guessing each letter/word is wearing us both out.  Some of you have witnessed or experienced how long one sentence can take! 

So thankful for each of you reading the blog and praying.




3 comments:

  1. Quick! Give us another specific prayer request!!

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  3. Wonderful news. Keeping you in my thoughts and prayers. Sonya

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