Update from Nancy:
It’s only been a few days since we all have been praying specifically for Steve’s voice to return and for the swallowing to begin. I’m thrilled to say that signs of both came just yesterday and today!
The speech therapist has been trying a variety of things to see what might now be possible. When he inserted a special diverter into Steve’s vent tube and asked if he could make a sound, he did! Steve then was able to respond when asked to say “Hi, Bob” to the respiratory therapist. His “Hi, Bob” was not his normal voice, but it was clear enough to be unmistakable. Today, we heard more, with the same adaptation of the vent. He said “industrial engineer.” Brad (speech therapist) then felt for the beginning of the swallow reflex. Not enough to actually swallow, but could feel something moving in that muscle. The speech session was rewarded with a little more of the coveted sherbet!
Brad also fashioned some lenseless glasses to which he attached a laser pointer. He then made several charts with letters, trying to get the right size chart and letters for Steve to be able to point to as he moves his head. He hopped up and down on a chair (Brad, not Steve) trying different heights and positions around the room for the chart. Steve had some success, even though his eyes don’t track well together yet and we will practice a lot over the weekend. This would be a real breakthrough as the spelling through head/jaw movements, one letter at a time and me guessing each letter/word is wearing us both out. Some of you have witnessed or experienced how long one sentence can take!
So thankful for each of you reading the blog and praying.
Quick! Give us another specific prayer request!!
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ReplyDeleteWonderful news. Keeping you in my thoughts and prayers. Sonya
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