A Simple Timeline

A Simple Timeline...

March 9, 2014- Admitted to St E with minor symptoms (on eve of move from house to condo*)
March 10- Guillain-Barre diagnosis and progression to full paralysis and intubation
March 12- Transfer to University Hospital NSICU
March 12-26- NSICU at UC
March 26-27- Brief stay at LTAC- Drake Hospital at Christ
March 27- Emergency surgery for bleeding trach, transfer to SICU
March 28-April 14- SICU at Christ (pneumonia and PE treatment)
April 14-19- MICU at Christ
April 19th- Transferred back to Drake Hospital (at Christ) ROOM 3083 (Easter weekend)
July 31- First time outside in 21 weeks
August 25- First meal in 5 1/2 months
October 16- 67th birthday at Drake
October 31- MICU at Christ for treatment of pneumonia and MRSA infection
November 17th- Return to Drake Hospital (at Christ)
Thanksgiving-Christmas-47th Anniversary- New Year 2015
January 17th- Hematoma (dealt with for about a month following)
March 19- 2 weeks off the ventilator! Trach capped for first time ;)
April 4&5- Baptism service and Easter
April 20- "So long" party with Drake staff
April 23- Move to Providence Pavilion rehab center in Covington, KY
May 26- June 10th- St E hospital (trach out, MRSA treatment)
June 10th- moved to Gateway Rehab in Florence, KY (feeding tube removed)
July 2nd- moved to Rosedale Green in Latonia, KY
August 8th- first time sitting in the seat of a car in 17 months
Oct 16th- 68th birthday party at Rosedale
November 26th- Thanksgiving with family+ at the Rickerts
*November 27th- first time in condo since purchase*
January, 2016- began using a motorized wheelchair controlled by head
July 10- move to HealthSouth rehab to prepare for move to assisted living
July 28, 2016- moved to Elmcroft Assisted Living in Florence, KY. After 871 long nights apart finally sharing a roof with wife again!!
August 2018- moved out of Elmceoft. Steve to Emerald Trace. Nancy to the condo.

Wednesday, March 19, 2014

Wednesday-March 19th

Today was a day full of shadows and sunshine.

Dad had his 4th plasmapheresis today and appeared to handle it well. This was my (Flora) first glimpse of him in a few days and it was a bit disconcerting to see him lying in bed so still - until he gave one of the staff members a good solid "no" by turning his head! He is still feeling the effects of yesterday's anesthesia.

Mom is amazing. I was moved to tears seeing her tender care of him. Not only did she sweetly fill him in on the latest happenings, she performed range of motion on his arms and alerted the nurse to needed care. Plus, she spent the morning working on their taxes. Can you say "Woman of noble character"?!?

Dad will complete his plasmapheresis treatments on Friday. After that, he will need to be transferred to a lower level of care called a long term acute care hospital-LTACH for short.  Yesterday, they gave mom a list of 4 possible places and told her to make the decision. You can imagine how overwhelming this task appeared.

We decided that of the 4 choices there were really only 2 contenders and so we decided to visit them both today.  Our prayer was that the choice would be clear.

The first place was a bit of a shock- confusing, large, dreary and very institutional. I think we both fought the urge to run. Talking to the staff was reassuring-we could tell that they really knew their patients but afterwards I couldn't help but remark on their surprising lack of eyebrow grooming!! The whole place just felt "unplucked" We left there quite deflated but decided to dig deep and check out the second place.

While wondering aloud about "What to do about Charlie?" (the dog) and "Who could we call to let Charlie out?" Mom received a text from Sue Geigler "Would it be ok if Dave went over to the condo to paint?" A prayer answered before we even asked.  This gave us renewed energy to tackle the next hospital-knowing that our God cares about even the smallest of needs.

The second place was a welcome change- smaller, more homey, and lots of responsive staff with great eyebrows!! ;) The staff spoke with awe of the transformations that they have seen in their patients. We were also impressed by how they spoke of knowing the patient's family members by name and welcoming them into the care. The director, a kind smiley well dressed woman, was on her way out for the day, but when she was informed we were there with questions, came back inside, took us on a tour of the unit, answered all of our questions, and walked us back to the lobby. We left there HOPING that he could get in- a far cry from our earlier feelings of hardly being able to keep ourselves from fleeing.

Afterwards, we headed back to the condo. There we were greeted by Dave Geigler and a freshly painted hallway.  Thank you, Dave. Dad will return the favor soon :)

After that, dinner arrived - hot and homemade! Lasagna, salad, garlic bread and apple pie- brought by Werner and Linda Gondosch. It was wonderful and just what we needed!

While they were still here dropping off food, a neighbor came by to introduce herself and brought a breakfast casserole!!

So much provision in such a short amount of time left us both teary and thankful. Mom said "I'm just so grateful to be here in this place" To be able to say that after such a trying day says it all.  Thank you all for providing such tangible love. Your kindness is making an otherwise shadowy time full of sunshine.

2 comments:

  1. Wonderful update and I'm so thankful to hear about the small improvements. They are actually really big! Thank you to everyone who is taking such good care of you all. Love and prayers.

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  2. I love this blog. David and I are praying for you all. and enjoy seeing God work daily in your lives.

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